COMPARISON OF THE EFFECT OF PATIENT-CENTERED AND FAMILY-CENTERED EDUCATION ON QUALITY OF LIFE IN PATIENTS WITH RHEUMATOID ARTHRITIS REFERRED TO RHEUMATOLOGIC CLINICS OF EDUCATIONAL CENTERS AFFILIATED TO SHAHID BEHESHTI UNIVERSITY OF MEDICAL SCIENCES, TEHR
Abstract
Introduction: Rheumatoid Arthritis Chronic illness with various degrees of inflammation, swelling and pain in the joints. Because the disease is associated with impotence, the family plays an important role in the care of these patients. The aim of this study was to determine the relationship between familycentered education and quality of life in a patient with rheumatoid arthritis.
Methods & Material: In this research, a clinical trial study was performed on 96 patients with rheumatoid arthritis in Shahid Beheshti University hospitals. Patients in 6 groups of 16 patients, each group in 3 sessions, each session, 45-30 minutes, for 3 weeks with the presence of a patient and a family member in the family and patient group, with the presence of the patient in the patient group and with the presence of only one family member In the family group. Then they took part in the training classes. The first session, familiarity with the patients and about the disease of rheumatoid arthritis and drugs for patients by the researcher was given and the demographic questionnaire and the questionnaire sf-36 were completed. In the second session, a proper diet was prescribed and in the third session, appropriate exercises were trained. At the end of each session, the educational booklet was provided to the patients. Four weeks after the completion of the classes, the quality of life questionnaire (36sf) was completed by the patients.
Results: The quality of life before education in the family and patient group is 26 and in the group 35 and in the group is only 34. The quality of life after education in the family and patient group is 74 and in the patient group are 57 and in the group are only 38 families. The findings showed that before the intervention, the quality of life score was low in all three groups, but after intervention, the mean scores of quality of life in two groups of the family, patient and patient group were significantly higher than the pre-intervention group, and in the group only the family There was no significant difference between the scores of the three groups of the family and the patient and the patient group and the family group in the quality of life score, and the quality of life in the family and patient group was much higher than that of the patient group and the family group. And the quality of life score later the intervention in the patient group was much more than the family group.Downloaded from Medico Research Chronicles “Comparison of the effect of patient-centered and family-centered education on quality of life in patients with rheumatoid arthritis referred to rheumatologic clinics of educational centers affiliated to Shahid Beheshti University of Medical Sciences, Tehran” Ghadi S. R. et al., Med. Res. Chron., 2018, 5 (1), 101-109 Medico Research Chronicles, 2018 102
Conclusion: The role of the family with the patient has been emphasized on improving the quality of life. Based on this research, family planning nursing interventions and family members' participation with the patient are recommended for the care of a patient with rheumatoid arthritis.
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References
2. Zareii, A.R., The Effect of Family-Based Empowerment Modeling by Multimedia Method (Multimedia) on Quality of Life in Children with Asthma, Masters, in Bushehr University of Medical Sciences and Health Services. 2015, Bushehr University. p. 5-11.
3. Keshtkaran, Z., et al., The impact of self care education on quality of life of those clients suffering from osteoarthritis in rehabilitation Centers of Shiraz University of Medical Science (Iran). 2010.
4. K alali Jouneghani, N., et al., The Effect of eight weeks of aerobic exercise on quality of life and pain in patients with rheumatoid arthritis. 2011.
5. Ebrahimi, M., et al., Status of self-care ability of patients with Rheumatoid Arthritis. Journal of Holistic Nursing And Midwifery, 2015. 25(4): p. 9-18.
6. Nadrian, H., et al., Relationship between quality of life, health status and self-care behaviors in patients with rheumatoid arthritisi in yazd (central Iran). 2011.
7. Fraenkel, L., et al., Decision tool to improve the quality of care in rheumatoid arthritis. Arthritis care & research, 2012. 64(7): p.977-985.
8. Rankin, S.H., K.D. Stallings, and F. London, Patient education in health and illness. 2005: Lippincott Williams & Wilkins.
9. Yacoub, Y.I., et al., Health-related quality of life in Moroccan patients with rheumatoid arthritis. Clinical rheumatology, 2012. 31(10): p. 1471-1477.
10. Ovayolu, O.U., N. Ovayolu, and G. Karadag, The relationship between self‐care agency, disability levels and factors regarding these situations among patients
with rheumatoid arthritis. Journal of clinical nursing, 2012. 21(1‐2): p. 101-110.
11. Manning, V.L., et al., Education, self‐management, and upper extremity exercise training in people with rheumatoid arthritis: A randomized controlled trial.
Arthritis care & research, 2014. 66(2): p. 217-227.
12. Berben, L., et al., An ecological perspective on medication adherence. Western journal of nursing research, 2012. 34(5): p. 635-653.
13. Hartmann, M., et al., Effects of interventions involving the family in the treatment of adult patients with chronic physical diseases: a meta-analysis. Psychotherapy and psychosomatics, 2010. 79(3): p. 136-148.
14. Mojarrad, k.A.H., H.A.B.A. Ghanbari, and g.m. Modares, The efficacy of group psycho educational interventions in promoting quality of life and quality of relationships on family of patients with bipolar disorders. 2012.
15. Matcham, F., et al. The impact of rheumatoid arthritis on quality-of-life assessed using the SF-36: a systematic review and meta-analysis. in Seminars in arthritis and rheumatism. 2014. Elsevier.
16. Malani, P.N., Harrison’s principles of internal medicine. JAMA, 2012. 308(17): p. 1813-1814.
17. Lee, T.-J., et al., Cost of illness and quality of life of patients with rheumatoid arthritis in South Korea. Value in Health, 2012. 15(1): p. S43-S49.
18. Gong, G. and J. Mao, Health-related quality of life among Chinese patients with rheumatoid arthritis: the predictive roles of fatigue, functional disability, self-efficacy, and social support. Nursing research, 2016. 65(1): p. 55-67.
19. Grønning, K., et al., The effect of an educational programme consisting of group and individual arthritis education for patients with polyarthritis—a andomised
controlled trial. Patient education and counseling, 2012. 88(1): p. 113-120.
20. Mitchell, M., et al., Positive effects of a nursing intervention on family-centered care in adult critical care. American Journal of Critical Care, 2009. 18(6): p. 543-552.
21. Smarr, K.L., et al., Online self-management in rheumatoid arthritis: a patient-centered model application. Telemedicine and eHealth, 2011. 17(2): p. 104-110.
