EDUCATION OF PARENTS OF CHILDREN WITH SICKLE CELL DISEASE TO FACILITATE EARLY DIAGNOSIS OF CRISIS.
Abstract
Background: Sickle cell disease (SCD) is a hemoglobinopathy that affects millions throughout the world. It leads to poor quality of life and increased mortality in children and young adults. In Vidarbha, SCD is common and it is pathetic to see children in morbid state dying due to some of the other crises. Parents must be educated about the nature of the disease, earliest signs of crises, and seek help, treat all febrile illnesses promptly. We contemplated that the key to success in the management of such children is parental education and this prompted us to undertake the present study.
Methodology:
Study Design: Interventional study.
Settings: Pediatric SCD clinic.
Study Duration: 1year Data Collection: Parent’s pre-existing knowledge and awareness about sickle cell disease were assessed with the help of questionnaires and Objective Structured Clinical Examination (OSCE). They were then educated with the help of an educational module comprising of pamphlets in Marathi, pictures, immunization protocols, and also trained in clinical examination of their child to detect pallor, fever, jaundice, respiratory distress, and splenic enlargement. After intervention post-test and OSCE were conducted again.
Results: The pre-existing knowledge about inheritance, signs, and symptoms of sickle cell anemia was high, but parents showed a lack of skills of assessment of crises. These skills improved significantly after intervention. There was a statistically significant (p<0.05) difference between average pre-test and post-test scores of each skill tested. Conclusion: Modular teaching using OSCE helps in improving the skills of parents for early detection of sickle cell crises.
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References
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